Who We Are
As a trusted charitable organisation founded in 2017, we, as two mums of children with life limiting conditions and profound disabilities found that we had no-where to turn for honest advice for products, medical issues, and found this journey utterly lonely and exhausting. So, after meeting through a Portage sensory group, we realised that we had something to offer other families and that's where our journey began.
Over the years, we have strived to become a social, friendly, welcoming, slightly bonkers place for parent/carers to come and we can share our knowledge and contacts that we have built up over the years, and our main goal is to not only help create strong friendships for other parent/carers but for their children too. We have a passion for fundraising to give these families one-off experiences, filled with fun and laughter to make life-long memories, particularly as most of our children have a short life expectancy, so we believe we should cram in as many memories as possible, while our children are well enough to experience them!
Contact us to see what you can do to make a difference in the community you live in. Every little bit of help is needed and appreciated.
Co-Founder & Chair of Trustees
Claire has 3 children, Ethan, Bailey & Charlotte. Bailey was born with a life limiting condition and he is her inspiration and drive for The Special Lioness, she has a particular invested interested in making every session, event and trip about the whole family, knowing how critical sibling relationships are. Claire lives in Washington and her background is in admin/branding and management.